Nuestro Manifiesto

We are fundraising. Please help us to continue to support children & young people living with Long Covid Long Covid Kids FREE Awareness Pack Continue Education Raising awareness of the symptoms of Long Covid and related illnesses in children and young people in all communities. Shining a light on the wide range of symptoms that children and young people can present with to aid early diagnosis and ensure early intervention and support. Read more Advocacy & Support Connecting and supporting the parents and caregivers of children and young people living with post-viral illness. Providing peer-to-peer support and advocacy for families with children and young people living with Long Covid. Supporting each other to get through one day at a time. Read more Please Donate Now Prevention Calling for wellbeing to be placed into the heart of education so that all children can learn, thrive and look forward to a healthy future. Encouraging healthy discussions on Indoor Air Quality that further understanding of the aerosol transmission of COVID-19 to improve the paediatric outcome. Read more LCK Blog Long Covid Recovery in Children | A Cautious Tortoise Read more Help UK Research Continue Aún no hay ninguna entrada publicada en este idioma Sigue en contacto... Partners Our trusted partners are listed below. Working together, sharing knowledge in collaboration to overcome COVID-19 challenges. INSTAGRAM

Impact What have we done? Participation ​ World Health Organisation (WHO) Long Covid Panel - defining Long Covid. ​ Ministerial Round Table on Long Covid chaired by Lord Bethel / Matt Hancock / Sajid Javid / Maria Caulfield - representing the experiences of children and young people. ​ National Institute for Health and Care Excellenc e (NICE) Expert Long Covid Panel representing the experiences of children and young people. ​ NICE - Contributing to the Long Covid Guidelines. ​ National Institute for Health Research (NIHR) - Long Covid Expert Group. ​ International Severe Acute Respiratory and Emerging Infection Consortium (ISARIC)- representing the experiences of children and young people. ​ NHS Long Covid Task Force - presenting & representing the experiences of children and young people. ​ Clinical Commissioning Groups - consultation for the development of the Paediatric Long Covid Hubs. ​ Westminster Forum - presenting the experiences of children and young people. (March 2022) ​ All-Party Parliamentary Group, UK Parliamen t (APPG) on Long Covid in Children - providing evidence. ​ Families Healthtalk Advisory Panel Oxford University - representing the experiences of children and young people. ​ Catherine Peckham Symposium - presenting the experiences of children and young people. (Jan 2022) ​ The Clock Study - Delphi Process for a research definition on Paediatric Long Covid. ​ The Children and Young People’s Commissioner for Scotland - children's rights. ​ Royal College of Occupational Therapists National Guidance - development of OT national guidance. ​ Center of Disease Control - referenced as a patient support resource. ​ NICE - referenced as a patient suppo rt r esource. ​ National Voices Webinar on Long Covid - networking & collaboration. ​ Long Covid Europe - Membership, information sharing and coproduction. ​ Labcorp Drug Development Webinar USA - Engaging Patients in Long COVID ​ ​ ​ Support ​ Peer to Peer Support Group - 5000 members - information sharing, validation and connection ​ Patient Signposting - improving the lived experience ​ LCK Connected - Online hangout sessions provide a connection for children and young people living with Long Covid. ​ LCK Occupational Therapist Group Support - funded access to professional guidance. ​ ​ ​ ​ Creation ​ Patient Support Resources - including Cautious Tortoise, Pacing Penguins, Teachers Tips ​ NHS GP 'Think Long Covid' - co-production of GP awareness leaflet ​ NHS My COVID Recovery Website - consultation on the pediatric page ​ Long Covid Kids Website - with a visitor every 45 seconds ​ Long Covid Kids Awareness Video - to raise awareness and change the narrative early in the pandemic ​ Long Covid Education & Awareness Pack - for schools & families ​ Long Covid Europe - school guidance ​ Published Articles - research, opinion pieces, and discussion including BMJ, The Lancet, Nature, The Conversation, New Science Magazine, National Geographic ​ ​ ​ Campaigning For Prevention ​ CoSchools - Supporting schools by delivering tools to help make them healthier ​ Schools Freedom of Information Requests - highlighting experiences in England and Scotland. ​ International Webinar of Pediatricians - bringing together expert clinicians and patients. ​ Technology 101 Prevention Webinar - hosted with industry experts to look at the options available. ​ Social Media Campaign - the only way to avoid Long Covid is to avoid Covid. ​ Social Media Campaign - CO2 Monitors in schools. ​ ​ Campaigning For Awareness ​ Long Covid Kids in the News - participation in documentaries and press interviews. ​ Social Media Campaigns - consistent messaging across multiple platforms - Kids get Covid / Long Covid / PIMS ​ National & International Representatives - England, Scotland, Ireland, Wales, Isle of Man, USA, Canada, Greece. ​ ​ Research ​ Pediatric Covid Research Library - a useful resource for families and clinicians. ​ Paediatric Research - independent research. ​ Connections - connecting participants and researchers for UK & International research. ​ Social Media Campaigns - sharing lived experiences to raise awareness and interest. ​ Polls & Surveys - to assist policy creators and service providers. ​ ​

Galería de síntomas de Long Covid Kids Download LCK Awareness Pack Sunday newsletter Long Covid todavía está siendo investigado y comprendido. El estudio Long Covid Kids. Mientras esperamos que se desarrolle la investigación, hay mucho que podemos aprender de otras afecciones inflamatorias crónicas. Long Covid es una condición multisistémica que requiere un enfoque holístico. Esperamos que toda la investigación beneficie a los niños de todas las comunidades con enfermedades crónicas a largo plazo, muchos de los cuales han estado haciendo campaña durante años. Esta página tiene enlaces a sitios web que nos han resultado útiles. POTS UK Postural Tachycardia Syndrome (PoTS) can be a life altering and debilitating health condition. Read more SCOTTISH INTERCOLLEGIATE GUIDELINES NETWORK A booklet for people who have signs and symptoms that continue or develop after acute COVID-19 Read more ME ASSOCIATION Provides information, support and practical advice for people, families and carers affected by M.E. (Myalgic Encephalopathy), Chronic Fatigue Syndrome (CFS) and Post Viral Fatigue Syndrome (PVFS) Read more LONG COVID PHYSIO Founded November 2020 by Physiotherapists living with Long COVID. Resources and advice on exercise and pacing. Read more LONG COVID SUPPORT Long Covid Support was formed by a group of people struggling to recover from Covid-19, who found each other online and have been facilitating international peer support and campaigning in the UK for recognition, rehabilitation and research into treatments since May 2020 Read more MASTCELL ACTION MCAS is part of a spectrum of mast cell disorders involving proliferation and/or excessive sensitivity of mast cells. MCAS causes a wide range of symptoms in any of the different systems of the body, frequently affecting several systems at the same time. Read more ABSENT The Sense of Smell Project (SoSP) is a collaboration between patients with smell disorders and scientists. Read more LONG COVID SOS Recognition - Research Rehab Read more BRITISH HEART FOUNDATION The website features a coronavirus support hub with lots of helpful information. It also includes what Covid-19 means for you if you have a heart or circulatory condition Read more DEPARTMENT OF WORK & PENSIONS Medical guidance for DLA decision makers (child cases): staff guide Read more PANS/PANDAS PANS is a neuropsychiatric condition triggered by a misdirected immune response resulting in inflammation of a child's brain. Read more NATURE DOC Integrated functional medicine supporting the body from the inside out Read more ZERO COVID ALLIANCE Zero Covid Alliance focuses on gathering all the COVID community efforts across the globe, create new ones by providing accessible information based on the circumstances in the area, and empower the general public in making informed, health-conscious decisions. Read more DYSAUTONOMIA Dysautonomia is an umbrella term used to describe several different medical conditions that cause a malfunction of the Autonomic Nervous System Read more NHS LONG COVID Advice on managing lingering symptoms of Coronavirus from the NHS Long Covid Library and Knowledge Services Read more NSPCC Coronavirus (COVID-19) advice and support for parents and carers Whether you're working from home with your kids for the first time or supporting children with anxiety due to coronavirus, we've got tips and Read more

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